My name is Victoria. I’m a twenty five year old college student. I model and run a fashion blog. I live in Connecticut, where I’m dating a great guy and play kitty-mommy to two tuxedo kittens. This is my tumblr about my search for a kidney transplant and organ donation.
Although a blogger by trade, it’s been a big step to open up about my chronic illness online. I’m not gonna lie, I’m still pretty anxious about the whole thing. I’m normally a much more private person by nature. However many portraits of my froyo the Internet may have been subjected to (like, 23895) - there are some things I’ve always considered things to keep in just for the real world.
The trouble with organ donation is that I am looking for, well, a gift. I can’t pick up a fresh, healthy kidney at the Apple store (I wish, right? Does it come in pink? ;D) I need to spread the word in order to have a fighting chance at outsmarting this life-threatening disease one more time.
When I was around five years old, I was diagnosed with polycystic kidney disease. This means the kidneys I was born with developed many cysts, hollow sacks similar in appearance to grapes and bubbles. As a child, my health declined at around nine to ten years old. By age ten, I needed my first kidney transplant. I didn’t really understand what was going on around me, but I knew I was tired all the times and always felt sick. I spent a lot of time by myself, staying home from school reading the classic Greek myths, fairytales and fantasy books. I had I to take a lot of medications and had to closely watch my diet. Thankfully, my father was my blood type and a great match. Kidney transplants show positive affects almost immediately and within weeks I had strength and energy I hadn’t had in years.
Kidney transplants are a fairly new procedure. A cocktail of medicines are used to keep your body’s immune system from attacking the transplanted organ, and new drugs are being tested and created all the time. I underwent several drug studies during high school, which often left me exhausted and nauseated. While the drugs kept me from rejecting the kidney, they also damaged it terribly with toxic chemicals.
By the time I was nineteen, a freshman in college, I needed a second kidney transplant. The medications and drug studies had worn my first transplant out, and it was no longer working well enough to keep me healthy. Without it, my symptoms returned with a vengeance. I began dialysis while I looked for another organ donor.
Luckily, my aunt provided my second kidney. This kidney was a good match, but the scarring inside my body from previous surgeries and other maintenance sent me back for more medicine and experimental procedures. I’ve also developed a resistance in my immune system, called donor-specific antibodies. Now at twenty-five, my second kidney is also rapidly failing after a sudden rejection episode. I am currently on dialysis again, a process to manually remove the building toxins from my body. My diet is very limited, and I have to make sure not to stress my body.
I visit the hospital and dialysis clinic several times a week, as well as work with a dietitian and other specialists. Week by week my medicines are re-evaluated and adjusted with constant blood samples. I receive injections to keep my red blood cell count up, and sometimes infusions of iron.
While I can live on dialysis for some time, my end desire would be to find a kidney so I can return to a mostly normal life. I want the energy to model, travel, see my friends, return to my studies, and live for a long time. While having a transplanted kidney isn’t a cure for my condition, it would be leaps and bounds ahead of where my health is currently.
I’m looking for a healthy person to donate a Type O kidney. Please share, reblog or repost this if you would like to help, donate, or know someone who would.
My personal Tumblr: angel-cake.tumblr.com
HELLO GUYS do any of you know good places online that sell CUTE ORNATE FRAMES? FOR NOT AN ARM AND A LEG? I can obviously shop on Ebay Etsy, Amazon etc BUT IM WONDERING if any of you guys know any secret frame shops that aren’t well known. Or something. I’m looking for nice 11 x 14 frames for my Sailor moon pieces and I’ve looked at all the stores near me. (Michaels, hobby lobby, Target, Walmart, Biglots etcetc) I’ll probably go thrift/vintage shopping next cuz I’m running out of options. I refuse to put them in boring looking frames :\
THANK YOU IN ADVANCE